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The Role of ‘Home’ in Caregiving – The Role of Partnerships in the Future of Caregiving

by Susanne Stadler | May 16th, 2012 | Our Homes | Please Comment

At last week’s  ‘Thought Leader Roundtable and Dinner’  Family Caregiver Alliance of San Francisco kicked off a discussion on the future of care giving by looking at the potential that private and public partnerships can provide.  This comes at a time when many funding sources for nonprofits are in jeopardy, when caregiving needs are rising because of the “tsunami” of the aging baby boomers, when care and healing has been mostly outsourced from the hospital to the family home, nursing homes or hospice and when families’ economic base is increasingly at risk because of care giving duties of family members.

I am grateful to Kathy Kelly, the director of FCA to invite an architect to join the discussion. It recognizes that our homes play an especially important role in our lives when we age at home and needs for various levels of physical and emotional support in daily living arise sooner or later. It is a dream come true for me and the continuation of my work with our ongoing interdisciplinary forum “At Home With Growing Old”  –  to bring together the disciplines who shape how we live and age in our homes – the prerequisite for  imaginative, integrated and human centered solutions.

Here is what I would have liked to say to rally the troops if time had allowed.

1. More and more people will age in their own homes – either by choice or necessity. Every home is potentially a home to grow old in. Therefore every home is potentially a point of care.

2. It takes a deep understanding of the diverse needs of aging to design environments for people to be “at home with growing old”. Architects/designers and technologists need to be involved in the debate about caregiving to produce imaginative, beautiful solutions. Caregivers and “end users” need to ask for design excellence.

3. Standardized rules are a point of departure, not the solution. The design rules known as the “Americans with Disability Act (ADA)” have become mandatory in 1990 for publicly funded housing and buildings with public functions.  A milestone – yet, as with many standardized rules, they have become a disincentive for imaginative, human centered solutions and have been misunderstood to satisfy the needs for “aging in place”. It is time to use our collective imagination to move beyond these standards.

4. We have to take risks. Pressed for efficient and cost effective solutions we all tend to deploy our proven strategies. If we really want to produce human centered design solutions, we have to be prepared to rethink and reinvent – not only in technology but in the practices of creating and funding environments that serve people throughout their life phases.

5. We are designing for ourselves. Why would not we want to put our creative energy behind solutions that will benefit all of us?

How can we formalize partnerships, between disciplines, between private and public institutions and organizations that allow us to reach the goals of human centered design solutions?

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About Hospitality – The Art of Giving and Receiving

by Susanne Stadler | April 26th, 2012 | Our Relations | Please Comment

Hospitality: ” The friendly reception and treatment of guests or strangers; an act or show of welcome.”

Hospitality emerged as a common thread in the last two AHWGO salons. In March Rabbi Elliot Kukla and Beth MacLoed talked about the art of giving and receiving care. In April, Susan Edwards, Executive Director at a Bay Area Assisted Living Residence talked with her chef and two residents about how to avoid the ‘drama in the dining room’ in senior residences where the challenge to fit into a new group becomes overwhelming for many. Rabbi Kukla opened the door to this connection when she talked about hospitality being at the center of giving and receiving care. This ancient custom of welcoming not only guests but also strangers into our houses is the key in learning how to be hospitable to ourselves, to our aging process. It allows us to receive care without losing dignity and the authority of adulthood.  Hospitality is also the key in allowing for reciprocity from the ones we care for or the loved ones who live in a care environment, recognizing that they need to be allowed/encouraged to continue to give. The notion of hospitality lifts care giving and receiving out of a state of neediness and weakness to a level of dignity and of an ancient human code of conduct. It takes time to be hospitable and it takes flexibility – at any age.

Susan Edwards made it clear that you have to feel at home in order to show the generosity of hospitality and diffuse the fear of not belonging.  Making somebody feel at home in a senior residence means to let residents know that they are in control. It means seeing meals as the opportunity for a nurturing experience and not as a necessity. Cooking and feeding people is the essential nurturing experience – it makes a difference when residents know their chef and know that she takes pleasure in spoiling them. A dining room hostess knows their wishes, their preferences and helps everybody to feel welcome.

It is encouraging that ‘The California Coalition for Change’ has also recognized the importance of the meal experience in the care of nursing home residents and has issued an in-depth study and recommendations.

The environment of giving and receiving care  -  where people can connect, where there is openness as opposed to compartmentalization, where there is a human centered approach to the design of the physical and social environment instead of one driven by the needs of the efficiency of care giving – an environment where people feel at home and are therefore able to extend hospitality to others. Food for thought for all of us.

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Imaging Aging

by Susanne Stadler | March 7th, 2012 | Our Relations | 1 Comment

How can I summarize so many different events? A fabulous presentation and ensuing discussion at our AHWGO Salon in February by Dmitri Belser the Executive Director of the Center for Accessible Technology made clear that barriers to technology use by older adults is more about a learning or experience gap than a disability issue – and this can be solved – cannot it? The Wisdom 2.0 conference in Silicon Valley that I participated in brought together the worlds of social networking ( such as Facebook and Twitter), Google ( I think a category by itself and one of the main sponsors of the conference), gaming (such as Zynga) and the world of mindfulness and wisdom with such great minds as Ekhart Tolle, Jon Kabat Zin, Jack Kornfield, Thupten Jinpa and Joan Halifax. As I write this it occurs to me that on the mindfulness side there are great teachers on the corporate side there are great companies – here it is more about an individual leader there it is more about the brand, the ‘corporate culture – otherwise why would not Larry Page have appeared alongside Jack Kornfield?  All the spiritual teachers projected the wisdom of older age – becoming a venerable teacher is a lifetime pursuit. The tech side is bursting with young people who are keen on innovating and making a lot of money. They carry at least as much responsibility for influencing human happiness as the teachers on the spiritual side so transferring mindfulness to the tech side makes a lot of sense – yet is there time? The wisdom of old age was conspicuously off the table though and when I proposed the topic “Being At Home With Growing Old  –  What Can Mindful Design Contribute?” at the ensuing Unconference, one person showed up (he was in his sixties). At today’s Afternoon Tea at the Family Service Agency of San Francisco Cathy Spensley brought together people of San Francisco agencies and organizations and individuals who work in the field of aging in San Francisco to start a dialogue on the isolation many older adults experience in San Francisco. An impressive cadre of inspired, passionate and compassionate people was bearing witness to the many initiatives in this City.

Is there something which holds these three diverse events together? It is the fact that outward signs of  frailty like the use of assistive devices or even a less sure gait are equated with cognitive disability by the other ‘four fifth’ and that it is as hard for oneself as it is for others to acknowledge old age and the limitations that inflict us without losing assurance and adulthood.

Who said one cannot demand that technology has to adapt to one’s way of interfacing with reality than the other way around? Who says that one cannot inspire innovation in old age? Who says that one cannot acknowledge that growing old is hard work? Who says that wisdom does not come from living a long life?

Until 2030 a disproportionately large  group of people is  growing into this 65+ range – the third third (not yet the second half) of life. There is a chance, a likelihood that this shear number will change how we all , the four fifth and the one fifth who are ‘old’ ( a constantly shifting field) will not only understand better what it means to be an older person but also stand up for this part of life and tap into its resources. It is an exciting time for stretching our imagination and imaging our own aging.

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